MEET THE PEOPLE
BEHIND CUREUSHER…

...And those by our side too.

CUREUsher was formed by Jo Milne when she saw the need to create a dedicated charity for Usher syndrome in the UK. Since then, CUREUsher has gone on to gain a committed team and board of trustees.

Our trustees are responsible for setting the charity’s strategy and governance, meeting regularly to discuss and decide on policies, fundraising, and campaigns.

CUREUsher is also the Secretariat for the All Party Parliamentary Group (APPG), for Usher syndrome formed by Jo and Steve in 2020.

They ensure the most effective use of their resources to reach those living with Usher syndrome, their families, and friends. All our board members are unpaid. They’re happy to volunteer their time and expertise to raise awareness and ultimately find a cure for Usher syndrome.

The CUREUsher team