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The Story of US is a progressive- positive awareness and fundraising campaign that has you at the very heart of it all- those that live with or are touched by, Usher syndrome.
Join our mailing list and we will be in touch with updates and information on the most recent developments, events and initiatives- of course, rest assured that we will never give your details to any third party without your permission- and you can unsubscribe at any time.
So- know your worth! share your story, be a part of a growing community of committed people, connected by the condition, forged by adversity and advocacy, determined to drive for positive change anchored by experience and authenticity- YOU have the power if we come together, join us in The Story of US
