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October 10th, 2019

World Sight Day 2019

Today is World Sight Day (WSD), an annual day of awareness to focus global attention on blindness and visual impairment. According to the World Health Organisation(WHO), there are approximately 2.2 billion people globally that have a visual impairment or blindness, of whom at least 1 billion have a vision impairment that could have been prevented or has yet to be addressed (due to causes such as cataracts, glaucoma). You can find more information on this from WHO at,…

Usher syndrome, a rare genetic disease that causes deafness and progressive sight loss (due to Retinitis Pigmentosa) affects at least 400,000 people worldwide. There is currently no treatment to cure or halt the progression of the sight loss due to Usher syndrome. What makes this disease even more devastating is that hearing cannot be relied on to help compensate for the sight loss experienced, making life even more challenging for a person who has Usher syndrome.

This is why we set up CUREUsher, to bring focus on Usher syndrome, and to raise and ensure that funds go to Usher syndrome research, while also encouraging for more collaboration among organisations and researchers. We believe that this is the key to get us closer to a cure. Please consider supporting us, and be part of the cure!