Tag: Usher syndrome

Claire Morley

NAME: Claire Morley AGE: 45 WHERE ARE YOU: Bury, Lancashire COMMUNICATION METHOD: Email, text messages using inverted colours and large text, limited lip reading, some deafblind manual sign language. YEAR OF USHER DIAGNOSIS: 1997 USHER TYPE: USH2A FAMILY/CHILDREN: Married to Craig, one daughter. CAREER: Previously a Social Care Officer ,and also a teacher of students… Read more »

Conquering the Mountain. (part two)

Part two of four in a series of?blog posts written by Deborah King of how she conquered Mt Kilimanjaro this year despite the challenges she faced along the way due to Usher syndrome. Day 3 ? It was a little chilly this morning but a t-shirt and jumper was fine to keep us warm enough.… Read more »

Conquering the mountain. (Part one)

Part one of four in a series of blog posts written by Deborah King of how she conquered Mt Kilimanjaro this year despite the challenges she faced along the way due to Usher syndrome. Honeymoons are meant to be relaxing, right? Well I don?t think my husband likes to relax, in fact I don?t even… Read more »

Catherine Gibson

Name: Catherine Gibson Age: 48 Where are you: Bury, Lancashire, England Communication method: Spoken. Year of Usher syndrome diagnosis:?Not sure, around mid 1990?s. Usher type:? Usher 2a. Family/children:?Husband and 2 teenage boys, and a guide dog. Career: Director of a construction consultancy company, and manage 3 more similar companies. Hobbies: Reading books, travelling especially city… Read more »

TIPS TO HELP MAKE YOUR CONTENT MORE ACCESSIBLE

Making your images, videos, website and social media content accessible to all can create a more inclusive world online, and one that everyone can be a part of. The following are some tips that may help to make your content more accessible for those that have visual impairment and hearing loss. Always include alt text… Read more »

TIPS ON HOW TO HELP/GUIDE A PERSON WHO IS DEAFBLIND

It?s day 3 of ?Deafblind Awareness Week?, and today it?s all about tips! Sometimes a person who is visually impaired or deafblind may require assistance when out and about. If you think someone requires assistance but you are a little unsure how to offer your help, then keep the following tips in mind. Remember, a… Read more »

THE MYTHS AND MISCONCEPTIONS OF DEAFBLINDNESS

It?s day two of Deafblind Awareness Week, and today we?re tackling the myths and misconceptions of deafblindness. There are so many myths and misconceptions surrounding deafblindness, so we?ve put together a few of those, and BUSTED them! Deafblindness varies widely from person to person that is affected by it. For some, the dual-sensory loss can… Read more »

DEAFBLIND AWARENESS WEEK

DEAFBLIND AWARENESS WEEK Deafblind Awareness Week (DBAW) is running from today, 24th June, to 30th June 2019. The purpose of this week-long awareness campaign is to create more understanding and enlightenment of deafblindness. During DBAW we are hoping to dispel some of the myths and misconception surrounding deafblindness as well as creating a more positive… Read more »

Founder of CUREUsher interview with BBC Look North

Joanne White, founder of CUREUsher, talks with BBC Look North about family life and her motivations behind setting up CUREUsher, a charity raising funds for Usher syndrome research. Subtitles/Closed captions are available by clicking the CC button.