Rare Disease Day took place on 29th February 2020. It was a very successful day with awareness of many rare diseases being raised across the world, and the reality of living with it.
CUREUsher took part by in the day by sharing facts about Usher syndrome, the leading genetic cause of deafblindness across our many social media platforms. In case you missed them, here is what we shared.
We look forward to creating exciting plans for Rare Disease Day 2021, stay tuned!