A young woman poses with her guide dog snuggling up together.


Amy Redpath

NAME: Amy Redpath AGE: 23 WHERE ARE YOU: United Kingdom YEAR OF USHER DIAGNOSIS: 2013 USHER TYPE:? Usher syndrome type 2 HOBBIES:? Gym and art. NAME THREE WORDS TO DESCRIBE YOU:? Friendly, quiet and shy. WHAT ARE YOU SURPRISINGLY GOOD AT:? Drawing/colouring WHO IS SOMEONE YOU ADMIRE AND WHY?? My mother who been there through… Read more »



Lynne is wearing a blue period costume dress. she has dark hair and is smiling at the camera.


Lynne Morris

NAME: Lynne Morris AGE: 38 WHERE ARE YOU: Anglesey, North Wales COMMUNICATION METHOD: spoken YEAR OF USHER SYNDROME DIAGNOSIS: 2004 USHER TYPE: 2 FAMILY/CHILDREN:? Husband and 3 children CAREER: none HOBBIES: Reading, music, photography. NAME THREE WORDS TO DESCRIBE YOU:? Thoughtful, kind and caring. WHAT ARE YOU SURPRISINGLY GOOD AT: Putting myself down! WHO IS… Read more »



A head shot of a Wasim smiling at the camera. Wasim has dark hair and is wearing glasses.


Wasim Raza

NAME: Wasim Raza AGE: 37 WHERE ARE YOU: Maryland, USA COMMUNICATION METHOD: Pro-Tactile ASL and spoken YEAR OF USHER DIAGNOSIS: 3 years USHER TYPE: 2A FAMILY/CHILDREN: Married with no children CAREER: Customer Service HOBBIES: Video game, reading history and movies NAME THREE WORDS TO DESCRIBE YOU: Honest, motivational and proactive WHAT ARE YOU SURPRISINGLY GOOD… Read more »



Image is of snow-capped peaks with the sky red behind them as the sun is setting.


Changes (part 4)

Final in a series of blog post written by Lynne Morris…? I have been back to the hospital many times since diagnosis. In 2010, I had to have cataract surgery for both eyes.? Not at the same time obviously! I was the youngest patient, when I went for the first eye.? I was so nervous… Read more »



A headshot of Lynne, looking at the camera and smiling. She is wearing glasses and has short dark brown hair.


Changes (part three)

Part three in a series of blog post written by Lynne Morris… I couldn’t really talk to my brother who was diagnosed alongside me. We both reacted differently.? We were both at different stages in our lives.? He was still living at home, therefore, didn’t have the same responsibilities that I had to take care… Read more »



Lynne is kneeling next to a guide dog, wearing a red and white harness.


Changes (part two)

Part two in a series of blog post written by Lynne Morris… I could have had one last blast in the car and driven home from my nan?s where I’d left it parked.? However, after a very long and serious discussion with my parents, it was decided it wasn’t worth the risk.? What if I… Read more »



A woman and a man are next to each other. The woman is Lynne, and she has short brown hair, and iis holding a cane in her hand.


Changes (part one)

This is part one in? a series of blog posts written by Lynne Morris… Changes It was a routine eye test at Specsavers that started it all, with a rather dishy older man.? I giggled like a little girl in my head every time he looked into my eyes.? It’s a very up close and… Read more »



Sarit, has usher syndrome, has with brown shoulder length hair is smiling at the camera. She is standing on a beach.


Sarit Amler

Name: ?Sarit Amler AGE: 42 WHERE AM I: Melbourne, Australia COMMUNICATION METHOD: Oral YEAR OF USHER DIAGNOSIS: Officially when we moved from Israel to Australia in 1985 at the Royal Eye and Ear hospital in Melbourne.? I was 9 years old. TYPE OF USHER:??Usher type 2 FAMILY: 3 Children (14,12,7) CAREER: Admin Assistant HOBBIES: Walking,… Read more »






Conquering the mountain. (part four)

Final post of four in a series of? blog posts written by Deborah King of how she conquered Mt Kilimanjaro this year despite the challenges she faced along the way due to Usher syndrome. I knew I should have begged Gavin to let me pay for a helicopter down, he didn?t seem to think it… Read more »






Conquering the Mountain. (part three)

Part three of four in a series of? blog posts written by Deborah King of how she conquered Mt Kilimanjaro this year despite the challenges she faced along the way due to Usher syndrome. Night 4 ? After two hours of shivering in our sleeping bags and getting very little sleep, we were up at… Read more »