COVID-19 Latest News and Updates

Here on our special COVID-19 page, we aim to provide relevant and accessible information to the Usher syndrome community that may be useful.

If you have any concerns or worries in regards to Usher syndrome and COVID-19 please don’t hesitate to get in touch via email at

We are here for you, and we will continue to remain active online during this time.

Stay safe, and look out for each other during this time.


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COVID-19 Updated

Our COVID-19 page updated with more information and advice.


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Getting help in an emergency

If you are experiencing an emergency and need to access the emergency services, there are several options how to do so including a 111 BSL service provider.


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BSL Resources

A list of British Sign Language (BSL) resources that may provide useful information in relation to COVID-19.



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RI USH SIG: Precautions and recommendations for people living with Usher Syndrome during COVID-19

Guidance from Retina International Usher Syndrome Special Interest Group for people living with vision and/or hearing loss due to Usher Syndrome. Read more here.


Retina International recently published two very important statements in relation to Coronavirus, COVID-19. Please take a moment to read these statements here.


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It’s a worrying time for everyone due to COVID-19, and CUREUsher feels it is important to ensure that accessible information is provided so everyone is kept informed of the facts and the necessary precautions that must be taken in order to delay and reduce the spread of COVID-19. Read more here.